![]() "It was very trying last year," said Amy. Amy said with both of them suffering fatigue they had to rely on her parents to look after Willow.īut worse than that, Nick had to take months out of work, and without a steady income they were financially "ruined". He had had it before and was getting ready to celebrate 10 years all clear when he found a lump near his ear under the skin.ĭoctors quickly removed it and he had a year's worth of immunotherapy treatment in 2022 to destroy any rogue cells. "I was thinking what the f*** am I going to do? I’m 31, I’ve got a little kid, I can’t just go to bed for the rest of my life," she said.įurther complications hit the family last year when Amy's husband Nick - who had become the only source of income - was diagnosed with stage 3 melanoma. That’s difficult because they know anything about it - and they freely admit that - and there’s no treatment, they tell you to go home and go to bed."Īmy began doing lots of research when he started to become apparent that ME was only part of the problem. ![]() "When they’ve ticked all those boxes, they lump you in the ME basket. She said: "They have to rule everything out before they can consider ME, but there's no blood test, they just have to diagnose you on symptoms, anyway. She was going to the GP for months to get tests to eliminate all other possibilities. I was just like, what is happening?" Amy's dad thought she might have ME (Myalgic encephalomyelitis) - or chronic fatigue syndrome - commonly caused by Glandular fever. "When Willow needed me in the night when she was little, I’d literally have to crawl across the landing because I was too weak to stand up. Speaking to The Mirror, she said: "I literally went overnight from going to the gym three times a week to struggling to get out of bed. Within a matter of weeks she only had enough energy for light activity two hours a day - and said she's never got any better in the years since. Ten days in, she got fatigue and suffered from breathlessness. Willow, then just 18 months old, had caught the bug - caused by the Epstein-Barr virus - at nursery but recovered after about a week.īut Amy found she was not getting any better, and her health was getting worse. When she was 31, she had just come home after a birthday trip and started feeling unwell. Amy, now aged 37, suffered from chronic fatigue, and the ligaments holding her skull to her spine have been severely weakened. Amy Ironside Wood contracted Glandular fever from her baby daughter Willow.īut the virus caused a "autoimmune cascade" in her body. ![]() A mum was bedridden for six years, after catching what she thought was a common cold.
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